Interlude

I’ve not written here for quite a few days, and I’m humbled that whenever I go off grid of any significant length of time, I start to get emails and calls enquiring as to my well being.

Thank you.

The truth is, I am sick. Only not that type of sick.

My daughter brought something home from school, a wonderful package of high temperature, sore throat, sickness, stuffy nose, coughing, inability to stay away during the day, inability to sleep during the night.

I think they call it the lurgy. If there’s one truth in our house, its that if she comes home with so much as a sniffle, I am sure to follow straight after. I’ve been down for almost a week, and the constant tiredness – I’m presuming – has also brought with it a flare up in my epileptic seizures.

You’ll remember, perhaps, that I’m temporarily on the wonder drug – Clobazam. The moment I started taking it, my seizures just stopped. Great I thought. But then they started again. Then they stopped. Then – two days ago – they started again.

Not such a wonder drug, then. I can’t stay on it too long because it melts your brain, though my GP has just done a repeat prescription to carry me through until I see my neurologist.

Yes, finally, I have my dates. I was promised my next MRI scan – the one where the doctors declare whether my tumour is stable or otherwise – would be in February.

It’s actually going to be on Friday 1st March. Then I have the painful nearly two week wait until I see my neurologist for results day on Tuesday 12th March.

So, it’s all happening a month later than I’d hoped. Which wouldn’t bother me, except it looks like I’ll have to live with these intermitted seizures in the meantime. I can only change my epilepsy drugs when I see my neurologist.

For now, I’ll just have to put up with whatever my brain throws at me.

So, sorry for going quiet for a while. You can blame the primary school children, with their snotty noses and germ distribution network.

I hope to be back to my normal writing, cycling and complaining self very soon.


One comment

  1. Similar lurgy has arrived in our household from the same source, just in time for half term.
    Good luck with your March appointments. I hope the dr is able to find a medical solution to the seizures and you get out on your bike again soon.

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